The world has lost a beautiful, brave soul.
brooke abbyA tiktok The star, known for sharing strength, humor and resilience despite ALS, has died at the age of 37.
ALS Network “Mourned the passing of Brooke Eby, an extraordinary advocate, storyteller, community builder and friend whose honesty, humor and determination changed the way countless people understood ALS,” the news release shared on its website.
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His statement continued:
“Diagnosed with ALS at just 33, Brooke made the intensely personal decision to share her experience publicly. She did so in a way that was unmistakably her own – candid, vulnerable, funny, outrageous, and remarkably human.
Millions of people came to know Brooke through her social media presence, where she offered an unfiltered window into living with ALS. She could explain a devastating reality, challenge a misconception and make people laugh, sometimes all in the same post.
Through that story, Brooke helped spread the word about ALS to people who previously knew little about the disease. He transformed awareness into understanding and understanding into action. Yet some of Brooke’s most lasting impact occurred in the community she created for others living with ALS.
Brooke founded ALStogether, an online coworking Slack community built around a simple but powerful idea: People navigating ALS should have a place to find other people who understand what they’re experiencing.
Sherry StrahlThe president and CEO of the ALS Network remembers Brooke as someone who “changed the way people looked at ALS, but he also changed the way people living with ALS found and supported each other.”
Read the full ALS Network description Here.
Brook, whose TikTok handle was @limbbroozkit, shared her diagnosis story years ago after first experiencing symptoms at age 29. See below:
@limpbroozkit my diagnosis story #grwm #diagnosis #terminal illness #als
♬ Original Sound – Brooke Abbey
Even as his condition worsened, he never lost his courage. These photos were posted just two weeks ago:
His impact will forever be on the lives of those affected by ALS.
May his soul rest in peace.
Click here To learn more about ALS and ways to support.
[Image via Brooke Eby/TikTok.]